Friday, March 18, 2011

It's done!

I finally FINISHED it!!!!
I am so happy with it....and even better....Madi loves it!
I am glad I took the time to hand quilt it...and I even bound it the old fashioned way.
I love it!

It is a pretty good size quilt.
The back is a King size sheet, with the end unstitched....
I hope it will last her a long time.
And it is reversible!
I have a bunch of extra fabric to make her some pillow cases to match.
Anyone want to guess how long that is gonna take me?
********
Today we went to Target with the little ones.
We found some pretty awesome clearance deals there.
A nice black and decker drill for $4!
Yep, $4!
So we got one for Port to have out in the garage.
And we got another one, just cause it was such a great deal.
I am sure we will find a use for it!
We also got two little shop vacs for $6 each!
Crazy!
Well, obviously we were hanging out in the tool isle.
Port was in heaven.
We checked out and as we were walking out of the store, Brent was going over the receipt and found $30 worth of tape measures on it.
I am the one who put them on the checkout belt....he is always saying I take and loose his tape measures....so when he was buying 3 (nice expensive ones), I thought maybe that was why.
I even chuckled when I was putting them up there.
Well, apparently, Brent did not put them in the cart.
Porter did.
Silly boy!

Thursday, March 17, 2011

Elsie's story- part 3

So we finally got an appointment with a neurologist.
We went when Elsie was 14 months old.

Here is a small blurb that I wrote on myfamily (website for my family side):
So we went to the neurologist today...things went well, he did   a good job, he spent a lot of time with us, and he said he doesn't think she has increased tone, or anything to be concerned about.   He does think she is behind in her milestones, but he said in 6 months, when our next appt. is, he thinks she will be all caught up.  
I don't know what is wrong with me.  
I should be happy nothing is wrong, but deep down I think there has to be something more than just her being behind.   I figure we are doing everything we can for her right now, and she is making progress, so I guess we will see where she is in 6 months from now.

I just left the appointment mad.
I just didn't feel like he listened to me.
And of course, I didn't want anything to be 'wrong' with my child....
But I just knew, in my gut, she was more than just behind.
I think Dr. Allie was a little frustrated too.
We decided not to go back to him.

In March 2008, when Elsie was 20 months old, we took her to a Developmental Pediatrician.



Here is what I wrote about that visit (I am glad I wrote all this on myfamily, or I wouldn't have it at all!):

So we took Elsie to the developmental pediatric today...he is a strange duck, but he worked with Elsie, and spent a lot of time with us.  
He said Elsie is "just a little puzzle".  
He said there are things that makes him think maybe it is genetic, the crease across her hand, her high arch inside her mouth, her small head.  
 But he hadn't gotten the results from our other Dr and the blood tests. 
He wants to know what the chromosomes said.
Brent and I both remember Dr. Allie saying they came back normal...but he said she might not have even gotten them back yet.
Anyway, so he will get those. 
If all is good with that we will order some different tests, and most likely do an MRI.
He says it will probably come down to her being diagnosed with mild CP.
 The Dr said he would want to do an MRI just to make sure there isn't anything inside we are missing.   Cerebral palsy, loosely termed is brain damage. 
And for there not to be any reasons for for Elsie to have brain damage...usually it comes from a traumatic delivery, deprived of oxygen,and other stuff that hasn't happened to Elsie... my pregnancy was no problem, birth was no problem, and so they just want to check to see if they are missing some other kind of cause.   Does that make sense? 
Anyway, but he did say for now we are doing what needs to be done to help her get the furthest along.
He did say he was amazed with how a baby could be so happy for so long and smile the whole time. 
A few things he said that kinda sums up her "puzzle" of a body.
  Her body is both high tone and low tone.
Her hips, ankles, elbows, and knees are all high tone, and hard for her to bend, and the rest is low tone, so when they try to work together one muscle is pulling harder than the other can so they just can't do the function it is trying to do.
She is at between a 9-10 month age in her speech and about a 12-14 month age in her motor skills....but he said cognitively she is ahead, he was amazed with how many body parts she could point to.
That she understood things you said to her...I told him it is like her mind knows what to do, but she just can't get her body to do it.
Man I think I would be so frustrated if I were her, but she is not.
She is such a blessing in our lives.
You can't look at her and not smile.
She is definitely our little angel.
Anyway...just thought I would slip in there...mothers intuition is always right...how long ago did I say that CP was what she had???
Anyway, we love our little angel!

I remember the fear I had of the Cerebral Palsy word.
Worried if she would be able to have a good life.
It wasn't a shock when she was diagnosed....because I had done research, and already knew in my heart that was what it was.
I knew we were giving her all the things we could.
She was happy.
Of course she would have a good life.
And she would make others lives better all along the way.

There is definitely more to the story.
So part 4 is on it's way.

Happy St. Pat's!

The kids woke up to green milk again today.
That silly leprechaun.
Elsie came home today from school and she kept talking about how the leprechaun 'wrecked' her classroom.
She thought that was just the best thing ever!
And what did we have for dinner?

Green pizza, of course!
Happy St. Patricks day!

Wednesday, March 16, 2011

Re-post videos of Elsie Rose.

I really want to get to part 3 of Elsie's story....but I, again, don't have time and need to go to bed.
But I did want to re post these videos of Elsie.
This is her around 14 months old.
We had been doing P.T. for a few months by now, and she was making some great progress.
Enjoy.
********

Sept. 14, 2007
Elsie has been working real hard and we wanted to share with our friends and families her latest accomplishments.
Elsie has just started to hold her bottle for herself, she won't do it if she is really hungry, and she is kinda just playing in this video, but at least it shows she can do it. She still can't really bring her arms up to tip the bottle up, but we are working on that.
This is the biggest thing she has been working on. I know that for most 14 month old babies, an army crawl isn't that big of a deal, but for Elsie this has been a huge milestone for her to reach. We are very proud of her. She is a determined little cookie!

Sept. 28 2007
Last night while playing patty cake with Elsie she started to clap, just a little...then today during physical therapy she went crazy clapping, well, as crazy as Elsie gets...so tonight- by the way, we finally rented 'barbie-Island Princess' and Cassi started to clap and Elsie saw her and followed suite...so we got the camera out.
We got a couple claps, but I think she was wondering why we were all hovering over her acting like nuts! Anyway, just sharing the good news!

My boy....

Oh man....I think we have our hands full.
I always say "That's my boy!" to Port.
He smiles and likes it...but today he added "That's my Mom!"
It was so sweet.
This little guy is really so lovable.
Rotten and lovable..
When it is him alone at home with me or dad, he is a perfect angel.
Helping in all ways he can.
When Elsie gets home...it isn't too bad...but he definitely tries to cause some trouble.
But when 4:00 hits....pretty much all 'goodness' goes out the window!
When the big girls get home it is chores, homework, making dinner....all that fun stuff.
And no Port time, I guess.
So he makes some trouble.
So, if anyone out there is dying to have a little boy between the hours of 4 and 7....I have the perfect one for you!!!
He has some pretty great eyes....
The cutest little cross bite ever....
And perfect squinty smiley eyes!
****
We have been watching "Open season 2" recently.
There is a part in the movie when they belt out a song....something like, 'ahhhhhh, ahhhhh, ah, ah...close to you...'
Anyway...Port and I love to belt that one out....and it gets pretty loud.
It is pretty funny, and SO MUCH FUN!
Here it is, so you can really appreciate it...check out right around 1:30 into it.




Okay....never mind....
I'm gonna keep him.

Tuesday, March 15, 2011

Getting the clubhouse ready for Spring.

It has been raining all day.
Except for when the kids got home from school...it was pretty nice.
So they did some playing outside.
The girls wanted to be sure that the clubhouse was all ready for all the fun they will be having when the weather gets better.
They were even trying to wash all the chalk off the inside walls.
That didn't really work out very well.
I also took a picture if Porter, he was trying to help out.
The girls didn't really want his help.
Anyway, the picture was way over exposed...but I kinda like how it turned out.
And I had to include this picture.
This little girl is SO SPOILED by Daddy.
And she knows it.
She didn't want to go to bed tonight (we are still adjusting to Day Light's Saving.)
So Dad let her cuddle up with him.
These two have been playing non-stop.
Dad is constantly giving her horsey back rides....and they talk in their own little 'horse' language.
She is his doctor, when she isn't being his brand new born baby.
I love that they get to have so much play time...
********
Part 3 in Elsie's story will be coming soon.
Hopefully tomorrow.

Monday, March 14, 2011

F.H.E.

Madi has been dying to do this F.H.E. that she put together for Activity Days a few weeks ago.
Finally, she got to do it.
She did a great job.
We had a fun time talking about the Plan of Salvation.
And looking up the scriptures that go along with it.
Thanks Bell, and sorry Em.
We were supposed to do it while Emmy was here....but it never worked out.

Sunday, March 13, 2011

Fun game...and shopping for books.

Before church, the girls were playing 'Simon says'.
They were all having so much fun with it....so while I was making dinner after church, Brent started up a new game.
Elsie is a pretty good player.
And she says 'Simon say' pretty darn cute!

Porter even had a fun time playing for his Time-Out location.
Little stinker.
He has been rotten...I am wondering if I should take him in and get his ears checked again.
But then again, he is two.
Maybe he is just being rotten.
Cassi was upstairs making herself a bookstore.
I wish I would have taken a picture, but it was bedtime before we even saw what she had done.
She had books displayed all over her room, and prices by each group.
Then on her door she had a sign for her book sale.
And she was all ready to keep track of her earnings on her chalkboard.
Pretty creative.
After brushing teeth and getting in jammies, we played 'bookstore' for a little bit.
She didn't quite make the $7-$9 range that she was looking to get from the books...
But she ended up changing the dollar sign to a cent sign.
They were much more affordable that way.
We just love Cass!

Saturday, March 12, 2011

Hanging with the Youngs.

We headed to Star this afternoon to hang out at Pat and Steve's.
It is always fun there...and the kids get worn out, which is always a bonus!
Pat and Steve got a nice new big hot tub that the kids couldn't wait to try out!
Elsie had fun playing with the bunnies...
And Porter got to hang with the guys while they shot guns and checked out the model train set.
There is so much to do out there, and we love it.
It was the perfect day for it.
*******
On a side note....
Treasure your families....kiss your kids...and be kind to others.
A friend of mine lost her husband last night in a very tragic way.
We are praying for her and her 5 sweet babies.
You never know what can happen and when it can happen.

Friday, March 11, 2011

Elsie's Story- part 2

Like I said before...she became a dream baby.
I had noticed a few delays...like not rolling over....but I also knew you can't expect every kid to be the same.
I actually thought it was cause she was spoiled....she was sure held a lot!
I do remember when holding her, you couldn't sit her on your hip...you know the position mom's do most.

Elsie actually couldn't open her legs very far to go around your waist.
So I got used to holding her with her legs out front.
No big deal.
She did always feel tight, but also strangely like a rag doll at times.
It was very puzzling.
At 6 months she wasn't sitting.
That had always been the benchmark milestone, I thought.
But again, I didn't want to compare her to other kids her age.

She could be propped up pretty nicely, so no big deal.
I would bring things up to the Dr. at appointments.
And I was always told that she was just a little delayed, and she would get caught up soon.
I think Elsie was about 7 months when we decided to find a new pediatrician.

I think that was the best thing we ever did for Elsie!
That is when we found Dr. Allie.
Dr. Allie agreed with us.
She agreed that there was something up.
Elsie was way too tight.
Her feet wouldn't sit flat, eating was hard for her, and she had missed so many other early milestones.
For the first few months we just watched her.

Around 9 months or so...(I sure wish I kept better record back then)...Dr. Allie decided she would send Elsie to have some Physical Therapy done.
This is something I wrote on our myfamily website:

"Well, I took Elsie in for her 9 month appt. She weighs in at a wopping 16 pounds, about 10%...so she went down a little in that, at 6 months she was at 15%. She is in the 50% for her height, and 8% for her head...

I talked to the docter about her upper body, and how she seems to not be developing as she should at this age, in her fine motor skills. Well, the doctor took a look at her, she noticed that Elsie is very stiff, in her joints, her legs and arms, so she wants me to take Elsie to a physical Therapist, to see what we can do to help her, and also see if there is anything else wrong happeneing, but she said Elsie is developing great in her launguage and the way she responds, it is just her fine motor skills she was concerned about. The doctor did say that stiff joints like this is a sign of ceberal palsy, but with the way Elsie responds and acts, she doesn't think that is something we need to worry about."

We went to the hospital for our first P.T. session, and Elsie was having none of it.
Like I said, she was spoiled.
I also think that Mom and Dad were the only ones who learned how to 'hold' her the special way to help her feel safe.
That might only make sense to me.
But to hold Elsie was quite the feet.
Like I said, she couldn't open her legs very much.
Her back was pretty stiff, so she kinda stuck out away from you.
There was no leaning in a cuddling...she simply couldn't do that.
Anyway, she knew she was safe when we held her, but when others tried to, she felt unsafe.
That is the best way I can describe it.
The lady at Physical Therapy suggested we look into the Infant/Toddler program.
If qualified, you would receive services in your home for your child.
Of course, we qualified....and that is when Katie, Joanne, and Jessica entered our lives.
I think she was about 11 months when we started in home therapy.

Once a week, Katie would come over and do P.T. with Elsie.
Katie has always been so great with her!
I can't believe she has been with us for so long!
Joanne is Elsie's Speech Therapist, and she came about once a week also, or sometimes 3 times in a month.
Now Elsie wasn't 'talking' much at that point...but Joanne did some awesome mouth exercises and massages to help her poor little tight mouth loosen up.
She was and still is amazing with working with Elsie.
I also credit her with Porter's recent obsession with the 'Ck' sound....hilarious!
And Jessica was Elsie's Occupational Therapist.
She worked on Elsie's fine motor skills a lot.
We sure miss Jessica.
She lasted until Elsie was too old for the Infant/Toddler program at 3.
But she is still around, and she was the one who suggested I get the electric blanket for little Elsie.
Thanks Jessica for being in our life!
We never had any kind of diagnosis...and the therapist didn't really have any suggestions either.
I am not sure if they just didn't want to make any, for fear of worrying me, or if they really just didn't know.
Then we hit One Year Old.
Of course no walking....or standing.
She could sit, kinda, but sitting on her own was a challenge.

She didn't have the core strength to hold her up for very long.
And she would slowly tip to the side.
And she did not have strength in her arms if they weren't right in front of her...so she never caught herself.
But she smiled...oh, she smiled!
What I have failed to mention through all of this....
Elsie was always such a trooper.
No complaining....
She was and still is the hardest worker I know!!!!
She tries her hardest, and gives her all.
She could not do the things that the little babies around us could do so easily.
But she was always so determined.
And she always had that smile.
That smile that just melts your heart.
******
This only covers up to the first year of her life.
So come back to hear more.
******
Only cause I can't skip a day blogging...he he he...
I will write a little about today.
I am so exhausted cause Elsie Rose had a rough night last night.
But she said she would sleep good tonight...we will see.
Elsie got to go to the birthday party of her best little friend Alex.
Alex got a bird for her birthday, and Elsie thinks it is pretty cool.
As long as Alex holds him.
**
Somehow the day got away really fast, and I have a really messy house.
So I am gonna load the dishes and go to bed.