Friday September 27

After my run, Dad and I took Cassi to the dr.

The rheumatologist.

They wanted to check out what is going on with her joints.

The dr was very nice and was very helpful.

They believe she has Ehlers Danlos disease.

It is the more common form of the disease.....so if you look it up and it says the life span is 28 years, that isn't the same thing Cassi has :)

We need to take her to get an echo cardiogram to make sure there isn't anything vascular going on...

I will report on that when we do that.

But other than that, it will mean some major taking care of her body.

She needs to really take it seriously to keep the muscles around her joints strong.

He said that if you think of those dolls that you push a bottom and they all fall apart....that is what her joints want to do.

They just want to let go.

The only way to keep them in there is to strengthen her body!

We stopped by Costco on the way home.

Then this evening we went to Porter's football game, not a winning game....but Porter had 3 awesome catches and he got some flag pulls.

So that was fun to watch.

Now Cassi has a group of friends in the hot tub......